Sickle-cell anemia or the sickle-cell disease is a disorder of the blood where red blood cells are shaped abnormally. This can lead to a host of health problems, including those that are lethal. Sickle cell charities for kids are meant to raise money to put toward awareness, research and other important programs.
Sufferers tend to have a shortened life expectancy. It used to be under 50 years old for both men and women. However, advances in knowledge and better management of disease has led to increased life span, with many patients living into their 70s or even beyond. Still, an important part of managing this disease is learning more about it.
Charitable organizations for children with this problem aim to earn funds to increase medical studies for this disease. They are also designed to bring about awareness to all. This is often done by organizing educational resources so that sufferers, including children, are able to learn more about this disorder and how best to keep it in control.
Many complications can come of this disease. Sufferers are likely to have leg ulcers, opiod intolerance, infarction, bacterial infections, stroke and many other problems. Most of these issues can be prevented or treated easily when a person maintains a healthy lifestyle and gets regular care from a doctor. Some treatments that are commonly issued to these patients: penicillin and folic acid, bone marrow transplants, acute chest crisis, hydroxyurea, transfusion therapy, bone marrow transplants and more.
These charities may put donations toward a variety of different programs and benefits. Ultimately, they focus their efforts toward supporting research, professional education, providing public information and advocacy. It is important to look into the background of the charities and organizations before contributing them, to ensure you know where the money is going and that the donation is being sent to a trusted entity. The thing that many of these groups share is the desire to find a cure for this inherited disease so that children do not have to grow up with this illness and eventually pass it on.
The first written record of this condition is said to have been from an autopsy report of the mid-1800s. By the 1900s, there were more instance of this being found in various parts of the world. This condition afflicts many different types of people but is primarily seen amongst those who are ancestors to people originating from East India, Africa, Mediterranean countries and Middle Eastern countries.
Diagnosis is usually done at birth through a blood test, which is routine for newborn screening. A child that tests positive on this screen will received a second blood test, known as hemoglobin electrophoresis, to confirm this diagnosis. Children that have this disease are more likely to get an infection or other complications, which is why early diagnosis and treatment is important as a preventative measure.
Children should receive regular care from a hematologist and doctor if they have this. There are special clinics where they can also receive care. Parents should always be vocal about questions and concerns they have, and educate the child as they grow old enough to understand. Charities do all that is possible to find a cure for this and help young people who have recently been diagnosed.
Sufferers tend to have a shortened life expectancy. It used to be under 50 years old for both men and women. However, advances in knowledge and better management of disease has led to increased life span, with many patients living into their 70s or even beyond. Still, an important part of managing this disease is learning more about it.
Charitable organizations for children with this problem aim to earn funds to increase medical studies for this disease. They are also designed to bring about awareness to all. This is often done by organizing educational resources so that sufferers, including children, are able to learn more about this disorder and how best to keep it in control.
Many complications can come of this disease. Sufferers are likely to have leg ulcers, opiod intolerance, infarction, bacterial infections, stroke and many other problems. Most of these issues can be prevented or treated easily when a person maintains a healthy lifestyle and gets regular care from a doctor. Some treatments that are commonly issued to these patients: penicillin and folic acid, bone marrow transplants, acute chest crisis, hydroxyurea, transfusion therapy, bone marrow transplants and more.
These charities may put donations toward a variety of different programs and benefits. Ultimately, they focus their efforts toward supporting research, professional education, providing public information and advocacy. It is important to look into the background of the charities and organizations before contributing them, to ensure you know where the money is going and that the donation is being sent to a trusted entity. The thing that many of these groups share is the desire to find a cure for this inherited disease so that children do not have to grow up with this illness and eventually pass it on.
The first written record of this condition is said to have been from an autopsy report of the mid-1800s. By the 1900s, there were more instance of this being found in various parts of the world. This condition afflicts many different types of people but is primarily seen amongst those who are ancestors to people originating from East India, Africa, Mediterranean countries and Middle Eastern countries.
Diagnosis is usually done at birth through a blood test, which is routine for newborn screening. A child that tests positive on this screen will received a second blood test, known as hemoglobin electrophoresis, to confirm this diagnosis. Children that have this disease are more likely to get an infection or other complications, which is why early diagnosis and treatment is important as a preventative measure.
Children should receive regular care from a hematologist and doctor if they have this. There are special clinics where they can also receive care. Parents should always be vocal about questions and concerns they have, and educate the child as they grow old enough to understand. Charities do all that is possible to find a cure for this and help young people who have recently been diagnosed.
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